Diabetes Education and Research Center
Back Chats
On Sun Feb 29 09:06:06 2004 Chris () said:
Where is everyone??? Doesn't
anyone post here any more??? I miss all the visits and info. Is walking still a
good idea if you have nerve damage to your feet? I have a treadmill so I don't
have to walk outside, last time I did I got infection in my big toe and it has
never been the same since.
On Sat Feb 21 13:19:22 2004 Victoria Kelly, RN (Vikki546@AOL.com) said:
I am
looking to develop a curriculum for the mentally disabled who have diabetes.
Many times my patients lack the mental capacity to understand the effeccts of
diabetes. The clients I work with have a an average IQ 40-60 and have the
maturity of a teenager. I am interested in teaching tools that may help us at
their level of undewrstanding. Any suggestions
On Fri Feb 20 20:14:06 2004 changing administrations (will not help at all
unless) said:
our congressmen and senators suddenly lose all their personal
wealth and develop the health problems their constituents suffer! The
administration can make proposals but the Legislature has all the power to run
them through or to kill them, or to revise them. What we probably need is a
viable third party that can end the political deadlock! Budget cuts are NOT the
answer when you know the first budgets cut will be those for medical care!!!
It's all about power and that means money and average seniors and the afflicted.
It is a myth, by the way, that baby-boomers are the driving force. I do a lot of
surveys and when I hit 55 last year the number I was eligible to complete
dropped drastically. A year later it dropped again. It now costs $92 to walk
thru the door of the clinic and the service gets worse and worse. And TODAY I
got the new phonebill -and they are charging for local calls now. I am surprised
to see the Canadian module isn't working for them either! That is disappointing.
The elections this fall are NOT going to help any of us either way.
On Fri Feb 20 09:37:50 2004 Sam () said:
Thanks for the Canadian info. I was
just notified yesterday that I have Medicare. Since October! No word, no
card...and now I get to pay 4 months of Medicare, back to October, 03' and the
card comes in 4-6 weeks. So..basically no ins. for my insulin pump supplies
until then. What do people do??? What a system. O well...onward...buried in snow
here in Mn.. Have a good day, all.
On Thu Feb 19 18:57:24 2004 Sam () said:
You just don't win anywhere,
huh.
On Thu Feb 19 13:32:44 2004 BC Canada (Pharmacare and Medical Services Plan in
British Columbia ) said:
Universal plan for individuals under 65 and their
families who qualify for MSP premium assistance. New cost - The first $800 for
prescriptions each year.Universal plan for all other individuals under 65 and
their families. New cost - The first $1000 for prescriptions each year and 30%
of total prescription costs thereafter, to a maximum of $2000 each year. After
you reach $2000 there is no charge
On Thu Feb 19 08:19:22 2004 Sam () said:
Re-reading this chat board, I see
someone struggling with the SSI problem, and it makes me very sad. Legislated
poverty indeed. It sets you up as a dependent (an ILL one!) needing medical care
and then you must live in subsidized housing, under programs that will penalize
you. There is no future in this. I know ..I just got off of the program. My Ex
died, and now I am a "disabled, divorced spouse" and receive his s.s. but I am
NOT 65 yet, so there goes the medical. All gone. Up goes the rent. And have any
of you tried, as an insulin dependent diabetic, to get health coverage? This
whole system is set up to take everything. To make "fellow americans", with
disabilities, into a class of fear-filled, needy, depressed human beings.
Insulin is $75.00 a bottle. That's cash...that's one of 10 drugs I need. So now,
I can beg from the drug companies, who set this up, and ask for programs to get
things like synthroid, etc..it's set up to take your last dime, and the C.E.O's
of the medical establishments are rollin' in the dough. So, along with the
jobless, we ill folks are fallin' by the side. And contacting Legislators &
Congressmen is a joke. I just hope for a different administration..one that will
really help us diabetics with the health care we need! To avoid loss of limbs,
blindness, and the horrors ahead, that happen to diabetics! Sorry, I am
long-winded this morning.
On Wed Feb 18 19:22:42 2004 Sam () said:
Mandy...I don't know about insulin
pumps in the U.K. but you could find out at www.minimed.com Thats the pump I
have..loved, and can not use in the future, without living in a dump! I couldn't
afford anything else with Ins at $350.00+ all meds. I may move to Canada...get
Universal health care...I don't know a Soul there, just to survive. I am going
up there (from Mn) to see about options. Tomorrow. Good luck. Sam
On Mon Feb 16 23:10:49 2004 hmm (littlefamilytx@hotmail.com) said:
I am very
greatfull to all of you for your help and information; I have spent Quite a few
hours on the computer and gotten back up to date on treatment options and
methods,not much has really changed in the big picture other than the advice of
diaticians (I spell BAD sorry). and types of insulins (i'm on humulin 70/30
now). Thank you all, darrell
On Sun Feb 15 11:35:20 2004 PS (on the SSI) said:
...and my mother died
believing to the last breath that I should have put that Zebley money into a
savings account. She never "got it".
On Sun Feb 15 11:34:43 2004 Sam the problem with SSI (is the assetts
restriction) said:
There is an assett cap of $2,000 on liquid assetts which
means you cannot have a savings account, whole life insurance, or a pickle jar
in the kitchen if you are honest. If someone in your family dies and leaves you
more than $2,000 you are OFF of SSI including the Medicaid until you can "spend
down" the money. And then you have to tell them how much and how you spent it.
They don't "approve" your spending, just want it verified. You can own a home on
the golfcourse. You can drive a Lexus. You just cannot have any cash available
to you. Federal SSI is about $572 per month. Some states add more, some do not.
You CAN work on SSI and for every $2 you earn they will subtract $1 from that
monthly figure. So you can earn $1,144 more or less at a job and STILL hold onto
your Medicaid. But who can live on this??? Anything over a set amount, used to
be $20, had to be reported and they would subtract that amount from your
subsequent check. LEGISLATED POVERTY. The dumbest thing they ever did was the
Zebley Settlements - gave my son $21,000+ and SIX MONTHS to spend it down and
NONE of it could be spent "for his benefit". It would have been okay to buy
television sets with it, just no clothing or medicine. STUPID. We spent it down
to keep him on SSI; filed the appropriate report on how and where it went; to
this day my brain-injured son thinks mom ripped him off.. grrrr
On Sat Feb 14 10:42:50 2004 mandy (mandi.d@virgin.net) said:
Sam Iam also on
Lantus in evening and Lispro three times a day, It does not seem to work for me
so I think I will have to speak to my consultant next week. I wouldnt mind
trying an Insulin pump, but I dont know if they have them in th UK?? Has any
from the UK got one? let me know if you have and what you think of the pump.
Thanx
On Sat Feb 14 09:24:26 2004 Sam (raneysam@yahoo.com) said:
Little Family: I
am also a type one. I just became a Widow, and have an increased income, but
lost all benefits, including medical. I have been learning as I go...I have been
on the insulin pump, but supplies will not be covered by next month. O.K...I am
trying Lantus insulin as a base (which does not cover me, 24/7) 2 X a day, plus
Novolog at meals. This wonderful "health care?" system in the US is something
from a horror movie, when you fall into the gigantic "donut hole" of the medical
establishments. But if you are poor (broke) there is hope for Medical help.
S.S.I. Call 1-800-772-1213 Good luck.
On Sat Feb 14 08:50:06 2004 mandy (mandi.d@virgin.net) said:
www.diabetesstation.org Its ok if you go on around 2100.
On Sat Feb 14 00:05:20 2004 hmmm (littlefamilytx@hotmail.com) said:
I was
diagnosed with j. diabetes when I was 9 years old. since then I have lost touch
with it all; meaning that I am ignorant of the new research and treatments. I
have no insurance, I am a single father= (poor), And I would LOVE to talk to
others that would like to chat and share your feelings and thoughts. I have been
looking all day on the net for a diabetic chat web site and have found none! so
please feel free to e-mail me at, littlefamilytx@hotmail.com good luck, to us
all!!!!!!!!!!!!!
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